viernes, 10 de enero de 2014

The HD View with Veronica Ruiz Moreno 11 January 2014




Con esta entrevista ABRIMOS el canal LATINO
Les comparto con Mucho cariño que por primera vez se transmitira el programa de 4HD a las 11am en INGLES Y ESPAÑOL Hablaremos de los protocolos de investigacion y todo lo que hemos hecho con tu ayuda.. te va a encantar
The HD View with Veronica Ruiz Moreno


Feliz Sabado todo el mundo and thank you for tuning in to Help 4 HD Radio Española! This is your host, MELISSA BILIARDI.  Our call in numbers are 310-982-4227 or 877-497-4103 (tres diez, nueve ocho dos, cuatro dos dos siete, y ocho siete siete, cuatro nueve siete, cuatro uno cero tres.) – When you call-in press “1” and we will cue you into the show. Please tell all your colleagues, friends and family about Help 4 HD Radio and click “Follow” on our Show Page to get email reminders of upcoming episodes. Thank you 82,000 listeners for tuning in!

Welcome to our very first Spanish/Ingles Help 4 HD Radio program. Help 4 HD International believes that our bilingual programs will reach a population of its people in North and South America and globally who will benefit from information and education about Huntington's disease.

Our Co-Host is Daniel Medina, Help 4 HD Ambassador and Support Group Leader of the Inland Empire/Riverside. We are introducing our very first Espanol/Ingles radio program today.

Our incredible special guest is Veronica Ruiz Moreno who is Skyping into the show from Mexico City.

Hola Veronica y Daniel como esta! Welcome to the show!! Daniel help me out here…

1. Who is Veronica Ruiz Moreno?
  • Wife of a wonderful husband
  • Mother of an adopted 7 year old child
  • Diagnosed with Huntington’s 9 years ago
  • Athlete by conviction and altruistic because of destiny
  • Academic background

2. What is Huntington’s Disease?
  • It affects 10,000 people in Mexico
  • 30,000 family members are at risk
  • Longer life span means more diseases
  • It’s a community and family affair and not only an individual one

3. Impact that testing positive for HD has caused in your life
  • Made me value every moment, every instant
  • I adopted my son
  • Volunteered at Mexican Association for Huntington’s Disease for 8 years


  • Run marathons since 2007: Chicago, Toronto, Montreal, San Antonio, Berlin, Chile and coming up Venezuela.
§  Run with a blue shirt to raise awareness for Huntington’s.
§  I run for those that can’t run anymore because of the disease.
  • Wrote a book.
  • Creating my organization

4. Tell us about Fundacion Veronica Ruiz? http://www.loquierogritar.blogspot.com/
  • How will you help HD patients
  • Tell us about Corpored and how you’re working together to help HD families
§  Fundación Verónica Ruiz en Registro.fvrm@hotmail.com my code is the following P07VRM13 free of charge and we give you the capacity to utilize it. Any family could utilize it.
5. Tell us about Clinical trial at ABC Neurological Center
  • Dr. Ernesto Ramirez Navarrete

ANNOUNCEMENTS:
Jan 14 Jimmy Pollard
Jan 15 Gene Veritas aka Ken Serbin
Jan 16 Bonnie with CREST-E
Jan 21 Dr. Ben Deverman/Cal Tech
Jan 25 Brenda Vega Espanol/Ingles

This concludes our show this Saturday. Muchisimas gracias Veronica Ruiz Moreno for spending this time with us! Thank you everyone for tuning in! Come back and listen to the on-demand episodes. Get the FREE app “Help 4 HD” the original mobile connection to Education, Resources and Information about JHD and HD. Find us on Facebook/Help4HD or www.Help4HD-International.org adios everyone!

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